The night before, I had Googled "optic nerve atrophy in teen males" and up popped a disease I had never heard of : Leber's Hereditary Optic Neuropathy. I scanned the article, and what I retained was "rare," "permanent blindness," "no cure." Stuff like that. Enough to convince me that I did not want Tanner to have that. And how could he? It was rare and genetic: nobody in my family had such a thing.
I didn't like the doctor. When I went to take notes on what she was saying, she held out her hand and said she would prefer that I listen to her. She said she was going to order an MRI - to rule out tumors and lesions, and then, if that were negative, she would order a spinal tap to rule out multiple sclerosis. But really, she said, she suspected something else. "What, LHON?" I asked.
The doc asked me how I could possibly know about that and I introduced her to Google. Seriously? Don't all people Google their symptoms?
I then called my mom and told her about the difficulties Tanner had been having, being careful to say vision problems instead of blindness. I broke down on the phone anyway.
And of course, after the appointment, Tanner and I went to lunch.
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